Quality of Life Research

http://link.springer.com/journal/11136

List of Papers (Total 430)

Expectations of younger patients concerning activities after knee arthroplasty: are we asking the right questions?

Purpose Indications for total and unicondylar knee arthroplasty (KA) have expanded to younger patients, in which Patient-Reported Outcome Measures (PROMs) often show ceiling effects. This might be due to higher expectations. Our aims were to explore expectations of younger patients concerning activities in daily life, work and leisure time after KA and to assess to what extent ...

HRQoL impact of stressful life events in children beginning primary school: results of a prospective study in Poland

Purpose To evaluate the relationship between recent stressful life events (SLEs), stress-related symptoms (SRSs), and health-related quality of life (HRQoL) in children beginning primary school. Methods A community-based sample of 6- to 8-year-old children (176 boys and 175 girls at baseline) participated in a prospective longitudinal study with three waves of data collection and ...

Quality of life in patients with a permanent stoma after rectal cancer surgery

Aim Health-related quality of life (HRQoL) assessment is important in understanding the patient’s perspective and for decision-making in health care. HRQoL is often impaired in patients with stoma. The aim was to evaluate HRQoL in rectal cancer patients with permanent stoma compared to patients without stoma. Methods 711 patients operated for rectal cancer with abdomino-perineal ...

Focus group interviews reveal reasons for differences in the perception of disease activity in rheumatoid arthritis

Objective Doctors frequently see patients who have difficulties coping with their disease and rate their disease activity high, despite the fact that according to the doctors, the disease activity is low. This study explored the patients’ perspectives on this discordance that may help to understand why for some patients, usual care seems to be insufficient. Methods In our ...

Objective drivers of subjective well-being in geriatric inpatients: mobility function and level of education are general predictors of self-evaluated health, feeling of loneliness, and severity of depression symptoms

Purpose Identification of optimal predictors for different indicators of subjective well-being (SWB) in geriatric inpatients: (1) self-evaluated health status (SEH), (2) feeling of loneliness (FoL), and (3) severity of depression symptoms (SoDS). Investigation of the relationship between response categories of the SWB indicators and their predictors. Methods The data were collected ...

Three-year trajectories of global perceived quality of life for youth with chronic health conditions

Purpose Objectives of this longitudinal study were to examine 3-year trajectories of global perceived quality of life (QOL) for youth with chronic health conditions, as obtained from youth and parent reports, and to identify personal and environmental factors associated with the trajectory groups for each perspective. Methods Youth with various chronic conditions aged 11–17 years ...

Associations between daily physical activity, handgrip strength, muscle mass, physical performance and quality of life in prefrail and frail community-dwelling older adults

Purpose The aim of this study was to examine the associations between daily physical activity (DPA), handgrip strength, appendicular skeletal muscle mass (ASMM) and physical performance (balance, gait speed, chair stands) with quality of life in prefrail and frail community-dwelling older adults. Methods Prefrail and frail individuals were included, as determined by SHARE-FI. ...

Psychometric assessment of the IBS-D Daily Symptom Diary and Symptom Event Log

Purpose Diarrhea-predominant irritable bowel syndrome (IBS-D) can considerably impact patients’ lives. Patient-reported symptoms are crucial in understanding the diagnosis and progression of IBS-D. This study psychometrically evaluates the newly developed IBS-D Daily Symptom Diary and Symptom Event Log (hereafter, “Event Log”) according to US regulatory recommendations. Methods A ...

International SF-36 reference values in patients with ischemic heart disease

Purpose International reference data for the SF-36 health survey (version 1) are presented based on a sample of 5508 adult patients with ischemic heart disease. Methods Patients with angina, myocardial infarction and ischemic heart failure completed the SF-36. Data were analyzed by diagnosis, gender, age, region and country within region and presented as mean ± standard deviation ...

The role of mindfulness in distress and quality of life for men with advanced prostate cancer

Objective To examine the extent to which mindfulness skills influence psychological distress and health-related quality of life (HRQOL) in men with metastatic or castration-resistant biochemical progression of prostate cancer. Patients and methods A cross-sectional survey of 190 men (46 % response; mean age 71 years, SD = 8.7, range 40–91 years) with advanced prostate cancer, ...

Health-related quality of life of among elders in rural China: the effect of widowhood

Purpose China has an enormous and rapidly growing population of widowed elders. Little is known about how losing a spouse affects elders’ health-related quality of life (QOL), especially in the rural areas where most Chinese elders live. This article analyzes QOL data collected in 2014 among rural Chinese elders to address this question. Methods SF12 questionnaires and information ...

Phenylketonuria patients’ and their parents’ acceptance of the disease: multi-centre study

Purpose Phenylketonuria (PKU) still poses a therapeutic challenge for patients and medical professionals. The aim of the study was to assess both patients’ and their parents’ acceptance of the disease. Methods The study included 218 PKU patients and 178 parents of PKU children who were enrolled in the study on the basis of questionnaire data. Results Regarding attitude towards the ...

The association between health literacy and self-management abilities in adults aged 75 and older, and its moderators

Purpose Low health literacy is an important predictor of poor health outcomes and well-being among older adults. A reason may be that low health literacy decreases older adults’ self-management abilities. We therefore assessed the association between health literacy and self-management abilities among adults aged 75 and older, and the impact of demographic factors, socioeconomic ...

Association of physical fitness with health-related quality of life in early postmenopause

Objective To assess the association of different components of physical fitness with HRQoL in early postmenopause and to test which physical fitness components are independently associated with the physical and mental components of HRQoL. Methods The final sample comprised 67 early postmenopausal women. Physical fitness was assessed with the Senior Fitness Test battery ...

Skin toxicity and quality of life during treatment with panitumumab for RAS wild-type metastatic colorectal carcinoma: results from three randomised clinical trials

Purpose Epidermal growth factor receptor inhibitors such as panitumumab are associated with characteristic skin toxicities. We summarise data from three panitumumab clinical trials to investigate the potential impact of skin toxicity on quality of life (QoL) in patients with metastatic colorectal cancer (mCRC). Methods The studies were randomised, open-label trials comparing ...

Comprehending the impact of low vision on the lives of children and adolescents: a qualitative approach

Purpose To develop a comprehensive, conceptual model detailing the aspects of a child’s life (<18 years) that are affected by low vision. Methods Three stakeholders were involved in the developmental process of the conceptual model: children and adolescents with a visual impairment (n = 40), parents of children with a visual impairment (n = 25) and professionals of ...

Changes in well-being after myocardial infarction: Does coping matter?

Purpose This study explores changes in emotional component of subjective well-being (SWB) of patients after their first myocardial infarction (MI) and two kinds of mechanisms: attribution of positive (PA) and negative (NA) affect and a mediation effect of coping. Methods Affect and coping strategies (problem-, emotion-, and avoidance-focused) were assessed in 121 male patients (age ...

The use and impact of quality of life assessment tools in clinical care settings for cancer patients, with a particular emphasis on brain cancer: insights from a systematic review and stakeholder consultations

Purpose Patient-reported data are playing an increasing role in health care. In oncology, data from quality of life (QoL) assessment tools may be particularly important for those with limited survival prospects, where treatments aim to prolong survival while maintaining or improving QoL. This paper examines the use and impact of using QoL measures on health care of cancer patients ...

Evaluation of measurement properties of self-administered PROMs aimed at patients with non-specific shoulder pain and “activity limitations”: a systematic review

Objective To critically appraise and compare the measurement properties of self-administered patient-reported outcome measures (PROMs) focussing on the shoulder, assessing “activity limitations.” Study design Systematic review. The study population had to consist of patients with shoulder pain. We excluded postoperative patients or patients with generic diseases. The methodological ...