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The effectiviness of an innovative web-based application to monitor HRQOL problems in paediatric rheumatology clinical practice
MAJ van Rossum
Reade (location Jan van Breemen), Department of Pediatric Rheumatology
Academic Medical Center / Emma Children's Hospital, Department of Pediatric Rheumatology and Immunology
Academic Medical Center / Emma Children's Hospital, Pediatric Psychosocial Department
From 18th Pediatric Rheumatology European Society (PReS) Congress
Bruges, Belgium. 14-18 September 2011
The use of Patient Reported Outcomes (PROs) in daily
clinical practice receives increasing attention. Former
studies suggest that discussing PROs improves
communication between physicians and patients and facilitates
early recognition of HRQOL problems. Especially in
paediatrics, there is a need to address HRQOL in daily
clinical practice in the context of a childs development;
repeated measurement of HRQOL in different
developmental stages can be valuable. With the use of PROs,
HRQOL problems can be detected early and tailored
intervention can be provided to the child, before the
HRQOL problems increase. However research of PROs
in paediatrics is still scarce. Children with Juvenile
Idiopathic Arthritis (JIA) are at risk for HRQOL problems.
Therefore, it is important to monitor their HRQOL
during doctors visits. The aim of this study is to investigate
the effectiveness of a web-based PRO about HRQOL
(KLIK PROfile) in paediatric rheumatology practice.
Material and methods
Children with JIA participated in a sequential cohort
intervention study. A control group without the use of
the KLIK PROfile was compared to an intervention
group with the use of the KLIK PROfile. Outcomes of
effectiveness were HRQOL topics discussed, satisfaction
and opinion about the KLIK PROfile.
176 (64.5%) children participated. The KLIK PROfile
increased discussion about psychosocial topics (p<.05).
Additionally, the paediatricians satisfaction about the
consultation increased (p<.01). The KLIK PROfile did
not influence the parents satisfaction. The parents rated
the use of the KLIK PROfile with an 8 (median). The
paediatricians regarded the PROfile meaningful in 90.2
% of the consultations.
We conclude that a web-based application to
systemically monitor HRQOL problems in paediatric clinical
practice is effective and should be implemented.