The effectiviness of an innovative web-based application to monitor HRQOL problems in paediatric rheumatology clinical practice

Pediatric Rheumatology, Sep 2011

L Haverman, MAJ van Rossum, HSA Heymans, TW Kuijpers, MA Grootenhuis

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The effectiviness of an innovative web-based application to monitor HRQOL problems in paediatric rheumatology clinical practice

L Haverman 2 MAJ van Rossum 0 1 HSA Heymans 1 TW Kuijpers 1 MA Grootenhuis 2 0 Reade (location Jan van Breemen), Department of Pediatric Rheumatology , Amsterdam , Netherlands 1 Academic Medical Center / Emma Children's Hospital, Department of Pediatric Rheumatology and Immunology , Amsterdam , Netherlands 2 Academic Medical Center / Emma Children's Hospital, Pediatric Psychosocial Department , Amsterdam , Netherlands - From 18th Pediatric Rheumatology European Society (PReS) Congress Bruges, Belgium. 14-18 September 2011 Introduction The use of Patient Reported Outcomes (PROs) in daily clinical practice receives increasing attention. Former studies suggest that discussing PROs improves communication between physicians and patients and facilitates early recognition of HRQOL problems. Especially in paediatrics, there is a need to address HRQOL in daily clinical practice in the context of a childs development; repeated measurement of HRQOL in different developmental stages can be valuable. With the use of PROs, HRQOL problems can be detected early and tailored intervention can be provided to the child, before the HRQOL problems increase. However research of PROs in paediatrics is still scarce. Children with Juvenile Idiopathic Arthritis (JIA) are at risk for HRQOL problems. Therefore, it is important to monitor their HRQOL during doctors visits. The aim of this study is to investigate the effectiveness of a web-based PRO about HRQOL (KLIK PROfile) in paediatric rheumatology practice. Material and methods Children with JIA participated in a sequential cohort intervention study. A control group without the use of the KLIK PROfile was compared to an intervention group with the use of the KLIK PROfile. Outcomes of effectiveness were HRQOL topics discussed, satisfaction and opinion about the KLIK PROfile. Results 176 (64.5%) children participated. The KLIK PROfile increased discussion about psychosocial topics (p<.05). Additionally, the paediatricians satisfaction about the consultation increased (p<.01). The KLIK PROfile did not influence the parents satisfaction. The parents rated the use of the KLIK PROfile with an 8 (median). The paediatricians regarded the PROfile meaningful in 90.2 % of the consultations. Conclusion We conclude that a web-based application to systemically monitor HRQOL problems in paediatric clinical practice is effective and should be implemented.


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L Haverman, MAJ van Rossum, HSA Heymans, TW Kuijpers, MA Grootenhuis. The effectiviness of an innovative web-based application to monitor HRQOL problems in paediatric rheumatology clinical practice, Pediatric Rheumatology, 2011, P128,