Lessons Learned: Feasibility of a Discussion Prompting Tool to Increase Fertility Risk Discussion Among Adolescent Oncology Families

The Qualitative Report, Jan 2016

The purpose of this study was to explore the feasibility of distributing a prompting tool (stress egg) in order to increase discussions about fertility risk and preservation (FP) among female adolescent oncology patients, parents, and healthcare providers (HCP). 200 eggs were distributed to four pediatric oncology centers. Qualitative interviews were completed with healthcare staff (N=7) after 6 months of distribution to newly diagnosed female oncology patients ages 12-18. Interviews showed that the main barriers to distribution of the prompt were: forgetting to distribute the eggs; uncertainty about the significance of fertility; and uncertainty about fertility issues in general for female adolescent cancer patients. The scientific community must continually explore effective avenues of communication to ensure such information is received. The stress egg has potential to impact a cancer survivor’s outlook on future partnering, family life, and self-concept when used in conjunction with policy.

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Lessons Learned: Feasibility of a Discussion Prompting Tool to Increase Fertility Risk Discussion Among Adolescent Oncology Families

The Qualitative Report Lessons Learned: Feasibility of a Discussion Prompting Tool to Increase Fertility Risk Discussion Among Adolescent Oncolog y Families Devin Murphy 0 1 2 3 4 Caprice A. Knapp 0 1 2 3 4 Kelly K . Sawczyn 0 1 2 3 4 All Children's Hospital - John's Hopkins Medicine 0 1 2 3 4 0 1 2 3 4 Susan T. Vadaparampil Ph.D 0 1 2 3 4 Alice Rhoton-Vlasak 0 Murphy , D., Knapp, C. A., Sawczyn, K. K., Vadaparampil, S. T., Rhoton-Vlasak, A., & Quinn, G. P. (2016). Lessons Learned: Feasibility of a Discussion Prompting Tool to Increase Fertility Risk Discussion Among Adolescent Oncology Families. Th e Qualitative Report , 21(1), 16-25. Retrieved from https://nsuworks.nova.edu/tqr/vol21/iss1/2 1 Part of the Quantitative , Qualitative, Comparative, and Historical Methodologies Commons 2 Jonathan Jacques Children's Cancer Center 3 University of Florida , USA 4 Department of Cancer Epidemiology, Moffitt Cancer Center, University of South Florida , USA the Social Statistics Commons Recommended APA Citation Follow this and additional works at: https://nsuworks.nova.edu/tqr - Article 2 See next page for additional authors Lessons Learned: Feasibility of a Discussion Prompting Tool to Increase Fertility Risk Discussion Among Adolescent Oncology Families Abstract The purpose of this study was to explore the feasibility of distributing a prompting tool (stress egg) in order to increase discussions about fertility risk and preservation (FP) among female adolescent oncology patients, parents, and healthcare providers (HCP). 200 eggs were distributed to four pediatric oncology centers. Qualitative interviews were completed with healthcare staff (N=7) after 6 months of distribution to newly diagnosed female oncology patients ages 12-18. Interviews showed that the main barriers to distribution of the prompt were: forgetting to distribute the eggs; uncertainty about the significance of fertility; and uncertainty about fertility issues in general for female adolescent cancer patients. The scientific community must continually explore effective avenues of communication to ensure such information is received. The stress egg has potential to impact a cancer survivor’s outlook on future partnering, family life, and self-concept when used in conjunction with policy. Creative Commons License This work is licensed under a Creative Commons Attribution-Noncommercial-Share Alike 4.0 License. Acknowledgements We would like to acknowledge the valued participation of the floor nurses who assisted in distributing these prompts. Authors Devin Murphy, Caprice A. Knapp, Kelly K. Sawczyn, Susan T. Vadaparampil Ph.D, Alice Rhoton-Vlasak, and Gwendolyn P. Quinn This article is available in The Qualitative Report: https://nsuworks.nova.edu/tqr/vol21/iss1/2 Lessons Learned: Feasibility of a Discussion Prompting Tool to Increase Fertility Risk Discussion Among Adolescent Oncology Families Devin Murphy Jonathan Jacques Children’s Cancer Center, Long Beach, California, USA Caprice A. Knapp University of Florida, Gainesville, Florida, USA Kelly K. Sawczyn All Children’s Hospital – John’s Hopkins Medicine, St. Petersburg, Florida, USA Susan T. Vadaparampil University of South Florida, Tampa, Florida, USA Alice Rhoton-Vlasak University of Florida, Gainesville, Florida, USA Gwendolyn P. Quinn University of South Florida, Tampa, Florida, USA The purpose of this study was to explore the feasibility of distributing a prompting tool (stress egg) in order to increase discussions about fertility risk and preservation (FP) among female adolescent oncology patients, parents, and healthcare providers (HCP). 200 eggs were distributed to four pediatric oncology centers. Qualitative interviews were completed with healthcare staff (N=7) after 6 months of distribution to newly diagnosed female oncology patients ages 12-18. Interviews showed that the main barriers to distribution of the prompt were: forgetting to distribute the eggs; uncertainty about the significance of fertility; and uncertainty about fertility issues in general for female adolescent cancer patients. The scientific community must continually explore effective avenues of communication to ensure such information is received. The stress egg has potential to impact a cancer survivor’s outlook on future partnering, family life, and self-concept when used in conjunction with policy. Keywords: Decision Prompt, Fertility, Pediatric Oncology, Discussion Infertility is a potential late effect from cancer treatment, however, there are a variety of options that assist in preserving reproductive potential. These options are most efficacious when initiated prior to treatment (American Society for Reproductive Medicine, June 2005). For females, there are a handful of options that may be considered for fertility preservation: embryo (fertilized egg) freezing, ovarian transposition (surgically relocating the ovaries away from the field of radiation), oocyte (immature egg) retrieval and freezing, (...truncated)


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Devin Murphy, Caprice A. Knapp, Kelly K. Sawczyn, Susan T. Vadaparampil Ph.D, Alice Rhoton-Vlasak, Gwendolyn P. Quinn. Lessons Learned: Feasibility of a Discussion Prompting Tool to Increase Fertility Risk Discussion Among Adolescent Oncology Families, The Qualitative Report, 2016, Volume 21, Issue 1,