Lessons Learned: Feasibility of a Discussion Prompting Tool to Increase Fertility Risk Discussion Among Adolescent Oncology Families
The Qualitative Report
Lessons Learned: Feasibility of a Discussion Prompting Tool to Increase Fertility Risk Discussion Among Adolescent Oncolog y Families
Devin Murphy 0 1 2 3 4
Caprice A. Knapp 0 1 2 3 4
Kelly K . Sawczyn 0 1 2 3 4
All Children's Hospital - John's Hopkins Medicine 0 1 2 3 4
0 1 2 3 4
Susan T. Vadaparampil Ph.D 0 1 2 3 4
Alice Rhoton-Vlasak
0 Murphy , D., Knapp, C. A., Sawczyn, K. K., Vadaparampil, S. T., Rhoton-Vlasak, A., & Quinn, G. P. (2016). Lessons Learned: Feasibility of a Discussion Prompting Tool to Increase Fertility Risk Discussion Among Adolescent Oncology Families. Th e Qualitative Report , 21(1), 16-25. Retrieved from https://nsuworks.nova.edu/tqr/vol21/iss1/2
1 Part of the Quantitative , Qualitative, Comparative, and Historical Methodologies Commons
2 Jonathan Jacques Children's Cancer Center
3 University of Florida , USA
4 Department of Cancer Epidemiology, Moffitt Cancer Center, University of South Florida , USA
the Social Statistics Commons Recommended APA Citation Follow this and additional works at: https://nsuworks.nova.edu/tqr
-
Article 2
See next page for additional authors
Lessons Learned: Feasibility of a Discussion Prompting Tool to Increase
Fertility Risk Discussion Among Adolescent Oncology Families
Abstract
The purpose of this study was to explore the feasibility of distributing a prompting tool (stress egg) in order to
increase discussions about fertility risk and preservation (FP) among female adolescent oncology patients,
parents, and healthcare providers (HCP). 200 eggs were distributed to four pediatric oncology centers.
Qualitative interviews were completed with healthcare staff (N=7) after 6 months of distribution to newly
diagnosed female oncology patients ages 12-18. Interviews showed that the main barriers to distribution of
the prompt were: forgetting to distribute the eggs; uncertainty about the significance of fertility; and
uncertainty about fertility issues in general for female adolescent cancer patients. The scientific community
must continually explore effective avenues of communication to ensure such information is received. The
stress egg has potential to impact a cancer survivor’s outlook on future partnering, family life, and self-concept
when used in conjunction with policy.
Creative Commons License
This work is licensed under a Creative Commons Attribution-Noncommercial-Share Alike 4.0 License.
Acknowledgements
We would like to acknowledge the valued participation of the floor nurses who assisted in distributing these
prompts.
Authors
Devin Murphy, Caprice A. Knapp, Kelly K. Sawczyn, Susan T. Vadaparampil Ph.D, Alice Rhoton-Vlasak, and
Gwendolyn P. Quinn
This article is available in The Qualitative Report: https://nsuworks.nova.edu/tqr/vol21/iss1/2
Lessons Learned:
Feasibility of a Discussion Prompting Tool to Increase Fertility
Risk Discussion Among Adolescent Oncology Families
Devin Murphy
Jonathan Jacques Children’s Cancer Center, Long Beach, California, USA
Caprice A. Knapp
University of Florida, Gainesville, Florida, USA
Kelly K. Sawczyn
All Children’s Hospital – John’s Hopkins Medicine, St. Petersburg, Florida, USA
Susan T. Vadaparampil
University of South Florida, Tampa, Florida, USA
Alice Rhoton-Vlasak
University of Florida, Gainesville, Florida, USA
Gwendolyn P. Quinn
University of South Florida, Tampa, Florida, USA
The purpose of this study was to explore the feasibility of distributing a
prompting tool (stress egg) in order to increase discussions about fertility risk
and preservation (FP) among female adolescent oncology patients, parents,
and healthcare providers (HCP). 200 eggs were distributed to four pediatric
oncology centers. Qualitative interviews were completed with healthcare staff
(N=7) after 6 months of distribution to newly diagnosed female oncology
patients ages 12-18. Interviews showed that the main barriers to distribution of
the prompt were: forgetting to distribute the eggs; uncertainty about the
significance of fertility; and uncertainty about fertility issues in general for
female adolescent cancer patients. The scientific community must continually
explore effective avenues of communication to ensure such information is
received. The stress egg has potential to impact a cancer survivor’s outlook on
future partnering, family life, and self-concept when used in conjunction with
policy. Keywords: Decision Prompt, Fertility, Pediatric Oncology, Discussion
Infertility is a potential late effect from cancer treatment, however, there are a variety
of options that assist in preserving reproductive potential. These options are most efficacious
when initiated prior to treatment (American Society for Reproductive Medicine, June 2005).
For females, there are a handful of options that may be considered for fertility preservation:
embryo (fertilized egg) freezing, ovarian transposition (surgically relocating the ovaries away
from the field of radiation), oocyte (immature egg) retrieval and freezing, (...truncated)