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Falling giants and the rise of gene editing: ethics, private interests and the public good

This paper considers the tensions created in genomic research by public and private for-profit ideals. Our intent is to strengthen the public good at a time when doing science is strongly motivated by market possibilities and opportunities. Focusing on the emergence of gene editing, and in particular CRISPR, we consider how commercialisation encourages hype and hope—a sense that ...

From ELSA to responsible research and Promisomics

Scope and objectives of the new journalIt is with great pleasure that we hereby formally launch Life Sciences, Society and Policy (LSSP) as a peer-reviewed, open access journal devoted to fostering scholarly research into the ethical, legal and social dimensions of emerging life sciences. LSSP provides an academic forum for engaged scholarship, interdisciplinary research, critical ...

Hippocrates revisited? Old ideals and new realities

Individual genomics has arrived, personal decisions to make use of it are a new reality. What are the implications for the patient–physician relationship? In this article we address three factors that call the traditional concept of confidentiality into question. First, the illusion of absolute data safety, as shown by medical informatics. Second, data sharing as a standard ...

‘Sifting the significance from the data’ - the impact of high-throughput genomic technologies on human genetics and health care

Chris Tyler-Smith Helen M Wallace Andrew O M Wilkie Frances Lucy Raymond Ruth Chadwick Nick Craddock Ros John John Gallacher Mathias Chiano 0 Institute of Medical Genetics, School of Medicine, Cardiff ... despite the longstanding recognition of the relevant pharmacogenetic phenomena: additional criteria of utility and costeffectiveness also need to be fulfilled [53]. Privacy and consent Ruth Chadwick

Bioethical Implications of Globalization: An International Consortium Project of the European Commission

San Francisco, San Francisco, United States of America. Emilio Mordini is at the Centre for Science, Society, and Citizenship , Rome , Italy. Ruth Chadwick and J. Martin Pedersen are at the University