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17 papers found.
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Publishing protocols for trials of complex interventions before trial completion – potential pitfalls, solutions and the need for public debate

Elizabeth Pearse 2 Tim Rapley 3 0 Department of Paediatric Neurology, Newcastle upon Tyne Hospitals NHS Foundation Trust , Newcastle upon Tyne NE7 7DN , UK 1 Institute of Neuroscience, Newcastle University

Participatory design in the development of an early therapy intervention for perinatal stroke

Watson 3 Tim Rapley 3 0 Department of Paediatric Neurology, Newcastle upon Tyne Hospitals NHS Foundation Trust , Newcastle upon Tyne NE7 7DN , UK 1 Institute of Neuroscience, Newcastle University

Perceptions of nursery staff and parent views of healthy eating promotion in preschool settings: an exploratory qualitative study

Background In the UK just over a fifth of all children start school overweight or obese and overweight 2–5 year olds are at least 4 times more likely to become overweight adults. This can lead to serious future health problems. The WHO have recently highlighted the preschool years as a critical time for obesity prevention, and have recommended preschools as an ideal setting for ...

Evaluation of a novel information resource for patients with bronchiectasis: study protocol for a randomised controlled trial

Background There is currently little patient information on bronchiectasis, a chronic lung disease with rising prevalence. Previous work shows that patients and their families want more information, which could potentially improve their understanding and self-management. Using interviews and focus groups, we have co-developed a novel patient and carer information resource, aiming ...

Paediatric musculoskeletal matters (pmm) – collaborative development of an online evidence based interactive learning tool and information resource for education in paediatric musculoskeletal medicine

Background We describe the collaborative development of an evidence based, free online resource namely ‘paediatric musculoskeletal matters’ (pmm). This resource was developed with the aim of reaching a wide range of health professionals to increase awareness, knowledge and skills within paediatric musculoskeletal medicine, thereby facilitating early diagnosis and referral to ...

Transitional care in clinical networks for young people with juvenile idiopathic arthritis: current situation and challenges

Clinical networks for paediatric and adolescent rheumatology are evolving, and their effect and role in the transition process between paediatric and adult services are unknown. We therefore explored the experiences of those involved to try and understand this further. Health professionals, young people with juvenile idiopathic arthritis and their families were recruited via five ...

Assessment of musculoskeletal abnormalities in children with mucopolysaccharidoses using pGALS

Background Children with mucopolysaccharidoses (MPS) often have musculoskeletal (MSK) abnormalities. Paediatric Gait, Arms, Legs, and Spine (pGALS), is a simple MSK assessment validated in school-age children to detect abnormal joints. We aimed to identify MSK abnormalities in children with MPS performing pGALS. Methods Videos of children with a spectrum of MPS performing pGALS ...

Open urethroplasty versus endoscopic urethrotomy - clarifying the management of men with recurrent urethral stricture (the OPEN trial): study protocol for a randomised controlled trial

Rees 6 Stewart Barclay 11 Jonathan A. Cook 10 Beatriz Goulao 4 Graeme MacLennan 4 Gladys McPherson 4 Matthew Jackson 1 Tim Rapley Jing Shen Luke Vale John Norrie 4 Elaine McColl 5 Robert Pickard 0 1 0

Study of Optimal Replacement of Thyroxine in the ElDerly (SORTED): protocol for a mixed methods feasibility study to assess the clinical utility of lower dose thyroxine in elderly hypothyroid patients: study protocol for a randomized controlled trial

Background The population of the UK is ageing. There is compelling evidence that thyroid stimulating hormone distribution levels increase with age. Currently, in UK clinical practice elderly hypothyroid patients are treated with levothyroxine to lower their thyroid stimulating hormone levels to a standard non-age-related range. Evidence suggests that mortality is negatively ...

Study protocol: longitudinal study of the transition of young people with complex health needs from child to adult health services

Background Young people with complex health needs have impairments that can limit their ability to carry out day-to-day activities. As well as coping with other developmental transitions, these young people must negotiate the transfer of their clinical care from child to adult services. The process of transition may not be smooth and both health and social outcomes may ...

Improving the normalization of complex interventions: measure development based on normalization process theory (NoMAD): study protocol

Background Understanding implementation processes is key to ensuring that complex interventions in healthcare are taken up in practice and thus maximize intended benefits for service provision and (ultimately) care to patients. Normalization Process Theory (NPT) provides a framework for understanding how a new intervention becomes part of normal practice. This study aims to develop ...

Evaluating complex interventions and health technologies using normalization process theory: development of a simplified approach and web-enabled toolkit

Background Normalization Process Theory (NPT) can be used to explain implementation processes in health care relating to new technologies and complex interventions. This paper describes the processes by which we developed a simplified version of NPT for use by clinicians, managers, and policy makers, and which could be embedded in a web-enabled toolkit and on-line users manual. ...

Normalisation process theory: a framework for developing, evaluating and implementing complex interventions

Elizabeth Murray 0 Shaun Treweek 1 Catherine Pope Anne MacFarlane Luciana Ballini Christopher Dowrick Tracy Finch Anne Kennedy Frances Mair Catherine O'Donnell Bie Nio Ong Tim Rapley Anne Rogers

Medical communication and technology: a video-based process study of the use of decision aids in primary care consultations

Background Much of the research on decision-making in health care has focused on consultation outcomes. Less is known about the process by which clinicians and patients come to a treatment decision. This study aimed to quantitatively describe the behaviour shown by doctors and patients during primary care consultations when three types of decision aids were used to promote ...

Development of a theory of implementation and integration: Normalization Process Theory

Christopher Dowrick 7 Shaun Treweek 6 Tim Rapley 3 Luciana Ballini 5 Bie Nio Ong 4 Anne Rogers 9 Elizabeth Murray 8 Glyn Elwyn 2 France Lgar 11 Jane Gunn 12 Victor M Montori 10 0 Department

Understanding the implementation of complex interventions in health care: the normalization process model

Background The Normalization Process Model is a theoretical model that assists in explaining the processes by which complex interventions become routinely embedded in health care practice. It offers a framework for process evaluation and also for comparative studies of complex interventions. It focuses on the factors that promote or inhibit the routine embedding of complex ...