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127 papers found.
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Pakistani healthcare professionals’ perceptions of communication with patients and their relatives about hereditary breast cancer: a qualitative study in a LMIC

highlighted the need for interventions to support intrafamilial communication about HBC. Much research and political support are needed to address patient, social, and systemic-level barriers to facilitate ... BRCA 1 and 2 genes for BC patients and their first-degree relatives, but only via private health services. Political intervention is needed to provide equitable access to genetic testing for all patients

Ethics of artificial intelligence in prenatal and pediatric genomic medicine

. For some, public and political concern about AI, plus its fast pace and relative novelty, could heighten distrust and simultaneously increase the desirability of transparency and openness in high-stakes ... responsibility gaps with artificial intelligence: why they matter and how to address them . Philosophy & Technology 34 ( 4 ): 1057 - 1084 . https://doi.org/10. 1007/s13347-021-00450-x Scott IA , Carter SM , Coiera

Translational invasion ecology: bridging research and practice to address one of the greatest threats to biodiversity

constraints of resource managers and policy makers. However, many scientific fields including invasion ecology suffer from a disconnect between research and practice. Despite strong socio-political imperatives ... which researchers, stakeholders, and decision makers collaborate to develop and implement ecological research via joint consideration of the ecological, sociological, economic, and/or political contexts

Getting invasive species on the political agenda: agenda setting and policy formulation in the case of ash dieback in the UK

This study reviews how the issue of ash dieback has been placed on the political agenda in the UK, a country where the disease has affected one of the largest national extents, thus representing a ... member states are constrained to act unilaterally on invasive species. In addition, there is also a great difference in how political systems, as opposed to the natural sciences, manage crisis. The logic

“What if” should precede “whether” and “how” in the social conversation around human germline gene editing

Françoise Baylis writes, ‘the political consensus on heritable human genome editing—such as it is— inclines toward an outright ban, and if not a ban, at least a moratorium’ (Baylis 2019a) . Although the ... Iltis AS , Hoover S , Matthews KRW ( 2021 ) Public and stakeholder engagement in developing human heritable genome editing policies: what does it mean and what should it mean? Front Political Sci 3

Kezia Barker and Robert A. Francis (Eds): Routledge handbook of biosecurity and invasive species

, a survey study of Swedish gardeners’ perceptions of non-native and invasive plants, and an excellent and terrifying contribution by Robert G. Wallace and colleagues on the political economy of

New year, new goals for the journal?

, ethical, and political problems caused by differences in representation between population groups in genomic research and biobanks, with African populations being the most under-represented. While this is

An updated assessment of the direct costs of invasive non-native species to the United Kingdom

hundreds of times in the scientific literature, in traditional newspapers and in political discourse. The estimates of economic costs of INNS presented in peer-reviewed manuscripts and reports are used as

Resource allocation in genetic and genomic medicine

Research Institute , Melbourne , Australia 2 Department of Political Science and History, Panteion University of Social and Political Sciences , Athens , Greece 3 Wokingham Borough Council , Wokingham , UK 4

Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality

greater connections with both the ICT-facilitated political contexts and the largely non-ICT participatory initiatives that have expanded in contemporary health and research contexts. In this paper, we ... of Bioethical Research and Analysis, National University of Ireland (Galway) , Galway , Republic of Ireland 2 Oliver Feeney 3 Bioethics Institute Ghent, Department of Philosophy & Moral Sciences, Ghent

Re-envisioning community genetics: community empowerment in preventive genomics

contextual and localized approach. In other words, many metrics for success will be specific to the social, economic, cultural, and political context in which a co-design is situated. Although developing ... ://doi.org/10.1016/j. ajhg. 2018 . 11 .002 Mehta RN , Seim B ( 2023 ) Avoiding “checkbox inclusion”: structuring meaningful inclusion of underrepresented groups in policy engagement . PS: Political Sci

“A perfect society”— Swedish policymakers’ ethical and social views on preconception expanded carrier screening

analyzed via inductive thematic analysis method, which generated seven themes and several subthemes. Policymakers harbored concerns regarding the economics, Swedish and international political respects ... level of administration whose role is to lay down the political agenda and institute values and guidelines for Swedish healthcare (Clinical Studies Sweden 2017). Healthcare provision in Sweden is publicly

A review of key terminology and definitions used for birth defects globally

after diagnosis. This is contrary to the underlying philosophy of the Sustainable Development Goals (SDG) “to leave no one behind” and the 2030 SDG3 target to “end preventable deaths of newborns and

Correction to: Managing biological invasions: the cost of inaction

according to the first record in InvaCost for each region based on the rworldmap package, where applicable. The authors have created this map for illustrative purposes and do not make any political claims

A collaborative genetic carrier screening model for the British Ashkenazi Jewish community

trustee of the charity, Jnetics. Dor Yeshorim ( 2021 ) https://doryeshorim.org/our-philosophy/. Accessed 16 Nov 2021 Foxler BE , Ziff OJ , Ellis I , Bodansky DM ( 2015 ) Effective provision of a genetic

Synthesising 35 years of invasive non-native species research

monitoring INNS, including detection, identification, and distributional mapping; (iii) Management and decision-making: topics discussing the management and socio-political aspects of invasion  science, such

Attitudes of Filipino parents of children with Down syndrome on noninvasive prenatal testing

Ramon Magsaysay Memorial Medical Center, Inc , Quezon City , Philippines 1 Department of Philosophy, College of Social Sciences and Philosophy, University of the Philippines Diliman , Quezon City

The assessment of marine bioinvasion diversity and history

regional cultural, social, economic, political, or legal—but not scientific—perspectives may regard some earlier introductions as “native”. Native (indigenous, endemic, autochthonous) species are those that

Should tourists care more about invasive species? International and domestic visitors’ perceptions of invasive plants and their control in New Zealand

draws upon broader social and political support than can be provided by the residents of the immediate area effected by the invasion, it is pertinent to expand the boundaries of who we consider to be IAS ... 63 ( 14 ): 2646 - 2662 . https://doi. org/10.1080/09640568. 2020 .1742676 Sage E ( 2019 ) Visitors to Aoraki/Mt Cook exceed 1 million . Government Press Release. https://www.rnz.co.nz/news/ political

Neophyte invasions in European heathlands and scrub

patterns of invasions, we delimited 50 European regions. Regions usually corresponded to political units (i.e., countries), except for large islands or archipelagos (the Balearic Islands, Corsica, Crete ... sand dune scrub, are at high invasion risk if human pressures increase. Because political boundaries do not usually act as the barriers to dispersal of alien plants, continental-scale studies with