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Search: authors:"Mosconi, Paola"

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Deciding on cystic fibrosis carrier screening: three citizens’ juries and an online survey

Health technology assessment and ethical issues have to be dealt with in deciding on national carrier screening for cystic fibrosis (CF)—the most frequent severe autosomal recessive disease in Caucasian populations and several stakeholders need to be involved. A citizens’ jury is one way to ask citizens to deliberate on controversial topics in the interests of a society. The aims...

How Italian health consumers feel about clinical research: a questionnaire survey

Background: Because little information is available about the public's awareness of and attitudes toward clinical research, we planned a survey on a convenience sample of health consumers. Methods: A cross-sectional national survey was carried out using a questionnaire with seven multiple choice questions and two scenarios. A convenience sample of 2000 individuals aged 18 years...